Friday, August 1, 2025
News Health
  • Health News
  • Hair Products
  • Nutrition
    • Weight Loss
  • Sexual Health
  • Skin Care
  • Women’s Health
    • Men’s Health
No Result
View All Result
  • Health News
  • Hair Products
  • Nutrition
    • Weight Loss
  • Sexual Health
  • Skin Care
  • Women’s Health
    • Men’s Health
No Result
View All Result
HealthNews
No Result
View All Result
Home Health News

Mum of boy with PPFIBP1 gene says finding others gave her ‘strength’

June 6, 2025
in Health News
Share on FacebookShare on Twitter


When Amanda and Nick learnt their son had a life-limiting condition, they had no-one in the same situation to turn to.

Jack is only 11 months old but is one of only 16 children in the world with a genetic condition that is so rare it doesn’t have a name.

“We are going to outlive our child, and knowing that his brothers and his sister may one day have to say goodbye to him… I can’t even begin to explain how difficult that is to process each day,” said Amanda.

But the mum said finding a woman in Georgia, USA, whose daughter had the same condition as Jack had been an source of “strength” for them, but added it was “very bittersweet” because unfortunately her daughter did pass away.



Source link : https://www.bbc.com/news/videos/c8d12qd02vmo

Author :

Publish date : 2025-06-06 21:56:00

Copyright for syndicated content belongs to the linked Source.

Previous Post

Novel Anticoagulant Flops for Staving Off Graft Thrombosis in Dialysis Patients

Next Post

Why dad never looked like his parents

Related Posts

Health News

Unnecessary Blood Culture Testing Persists in Pediatrics

August 1, 2025
Health News

Gut-Brain Disorders Surge After Pandemic

August 1, 2025
Health News

Cornwall mum ‘could be alive’ if older driver rules changed

August 1, 2025
Health News

Why are teens trying them?

August 1, 2025
Health News

Mums’ support group ‘buzzing’ at award nomination

July 31, 2025
Health News

Study Reveals Link Between Junk Food and Lung Cancer Risk

July 31, 2025
Load More

Unnecessary Blood Culture Testing Persists in Pediatrics

August 1, 2025

Gut-Brain Disorders Surge After Pandemic

August 1, 2025

Cornwall mum ‘could be alive’ if older driver rules changed

August 1, 2025

Why are teens trying them?

August 1, 2025

Mums’ support group ‘buzzing’ at award nomination

July 31, 2025

Study Reveals Link Between Junk Food and Lung Cancer Risk

July 31, 2025

Kamchatka earthquake response shows tsunami warnings are improving

July 31, 2025

FDA Slaps Stronger Warnings on Opioids

July 31, 2025
Load More

Categories

Archives

August 2025
MTWTFSS
 123
45678910
11121314151617
18192021222324
25262728293031
« Jul    

© 2022 NewsHealth.

No Result
View All Result
  • Health News
  • Hair Products
  • Nutrition
    • Weight Loss
  • Sexual Health
  • Skin Care
  • Women’s Health
    • Men’s Health

© 2022 NewsHealth.

Go to mobile version