Sexual Health Is Overlooked in Breast Cancer Survivors

Sexual health after breast cancer treatment is a significant concern for many women, yet it is rarely discussed. In a recent online survey, survivors of breast cancer were specifically asked about this issue.

Many survivors worry about their sex life after undergoing breast cancer surgery, radiation, chemotherapy, and endocrine therapy. Possible consequences include loss of sexual desire and urogenital symptoms such as vaginal dryness, reduced lubrication, and pain during intercourse.

The “Women’s Insight in Sexual Health after Breast Cancer” (WISH-BREAST) study was based on an anonymous online questionnaire with 44 questions. Distributed via email and social media, the survey focused on concerns about sexual health, experiences in seeking information, available treatment options, and the role of social media.

Nearly 90% Report Sexual Issues

A total of 1175 participants took part in the survey (99.9% identified as women, with an average age of 47.5 years). Of these, 89.5% reported moderate-to-severe sexual issues due to changes in their sex life after breast cancer treatment. The most commonly reported problems were:

• Reduced sexual interest (85.8%)
• Vaginal dryness (78.2%)
• Reduced arousal (69%)
• Body image issues (60%)
• Dyspareunia (59.4%)
• Fatigue (46.1%)
• Difficulty achieving orgasm (41%) 

Seventy-two percent of respondents said these sexual problems had impacted their relationship with their partner.

Lack of Information From Healthcare Providers (HCPs)

Nearly three quarters of participants (73%) reported receiving no information about the potential effects on their sex life from their healthcare teams. Of the women who were informed, 71% raised the topic themselves. Fifty percent of respondents expressed dissatisfaction with how the issue was addressed in clinical practice.

Social media was the most common source of information on this topic (80%), particularly accounts from healthcare professionals (71%).

The survey also asked whether nonhormonal treatments for urogenital symptoms were recommended. Forty-five percent of respondents said “yes.” The most recommended treatments were moisturizers and oils for vaginal dryness. Forty-seven percent had discussed vaginal hormones with their HCPs, and 28.7% had been prescribed them.

Limited Healthcare Support

The survey results highlight that concerns about sexual health are widespread among survivors of breast cancer but are rarely addressed by HCPs. Many women feel unsupported and turn to social media for information and help. The study’s authors stress that healthcare professionals involved in breast cancer treatment need better training to proactively address sexual health concerns and offer adequate support.

This story was translated from Coliquio.